October is Down Syndrome Awareness Month, a time to recognize and celebrate the many abilities of individuals with Down syndrome while raising awareness about their unique journeys. This month’s origins trace back to Venerable Jérôme Lejeune, the French geneticist who discovered the third copy of the 21st chromosome, which causes Down syndrome. His devotion to life and advocacy for those with disabilities is why he is now on the path to sainthood.
Jesus’ words, “Let the little children come to me, and do not hinder them, for the kingdom of God belongs to such as these,” (Matthew 19:14) often remind me of children with Down syndrome. They radiate innocence, love, and trust in a way that beautifully reflects God’s heart. While Jesus never specifically mentioned Down syndrome, he did speak of those born with disabilities, as in the story of the blind man, when he declared that neither the man nor his parents had sinned but that “this happened so that the works of God might be displayed in him.” (John 9:3)
My daughter was born with Down syndrome and, like over half of all babies with this condition, was also born with a heart defect. At a very young age, she needed open heart surgery, a hardship shared by many parents walking similar journeys. In Lily of the Valley, we often support families who have medically fragile infants, that are awaiting heart surgeries for their children, whether at home or in the NICU, PICU, or recovering in the CVICU. The suffering that these families endure is real, but through the passion of Christ, we are reminded that God can bring great good from this pain.
My daughter’s challenges have shaped our family profoundly, creating a ripple effect that has impacted our two older children, my husband, and me. Her life has been a gift and has inspired the creation of Lily of the Valley Catholic Ministry with my dear friend Whitney. We are committed to serving families in the Down syndrome and congenital heart defect communities, walking with them through both their joys and their suffering.
This month we also take time to celebrate the incredible potential of individuals with Down syndrome. Many people with Down syndrome live long, fulfilling lives, becoming active members of their communities and parishes. They achieve remarkable milestones—graduating from high school, pursuing secondary education, and even driving cars. Many enter careers of their choosing, work, and some get married, fully embracing their vocations. With the right support, they thrive in their faith communities, bringing joy and love to those around them. These individuals remind us that everyone has unique gifts and the potential to contribute meaningfully to society and the Church.
As we honor Down Syndrome Awareness Month, let us lift up these lives, recognizing their dignity and celebrating their many accomplishments.
In Thanksgiving for All of God’s Blessings,
Lizzy